Equipment with funding info
Adaptive strollers and wheelchairs commonly used by families. Provincial programs may cover a portion of the cost.
Some families prefer wagons for outings — easier for some children and more versatile.
Video monitor that detects abnormal motion and alerts. Danny Did Foundation may provide a grant.
Wrist-worn device that detects tonic-clonic seizures and alerts a caregiver's phone.
Under-mattress sensor that detects seizure-like movements during sleep.
Specially designed pillows for SUDEP risk reduction during sleep.
Standard video monitors for keeping an eye on your child during sleep, alongside seizure monitors.
Protective headgear for children with drop seizures. SSAH / Enhanced Respite may cover helmets.
Padded, flexible knee pads for daily wear to protect against falls during seizures.
Home oxygen for children who need it. Check with your physician about provincial coverage options.
Pulse oximeters for monitoring oxygen levels at home. Ask your physician about provincial programs.
Finger pulse oximeters available without a prescription for home monitoring.
Portable suction machines for airway clearance. Ask your care team about access in your province.
Reliable options for fever monitoring — fever is a major seizure trigger in Dravet Syndrome.
Check ears at home for kids with frequent ear infections — helps decide if a doctor visit is needed.
Underwear and briefs for children and youth — multiple brands and sizes available.
Essential for heat-sensitive Dravet children. Keep multiple ice packs ready and rotate them.
Wide-brim UPF 50+ hats for sun protection — important for heat-sensitive Dravet children.
Polarized UV400 sunglasses with secure strap for children.
High-top or ankle-supportive shoes with non-slip soles for fall prevention.